While most people will do anything to help their siblings, two-year-old Jonah Jones will be doing more than most when he undergoes a transplant procedure to donate bone marrow to his younger sister Esmae. At just seven months old, Esmae Jones has spent nearly all her life in hospital after being diagnosed with a series of rare conditions.
After noticing something wasn't right with their baby when she was just two weeks old, parents Peyton Bowen and Jordan Jones from Llanelli were given the devastating news that Esmae had been diagnosed with aplastic anemia and STING-associated vasculopathy with onset in Infants (SAVI). Both incredibly rare conditions.
As a result, Esmae is unable to fight off infections and her tiny body has to work so hard to keep her going that she has fought heart failure in intensive care. Find more of our health stories here.
