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The Guardian - UK
The Guardian - UK
Politics

‘The grief and loss is hard to bear’: the cruelty of Alzheimer’s disease

(FILES) This file photo taken on March 18, 2011 shows a woman, suffering from Alzheimer's disease, walking in a corridor in a retirement house in Angervilliers, eastern France. For decades now, soaring population growth and ageing rates have been forecast to ignite a global explosion of Alzheimer's, the memory- and freedom-robbing disease afflicting mainly 65-plussers. But an unexpected, and hopeful, trend may be emerging. / AFP PHOTO / Sébastien BOZONSEBASTIEN BOZON/AFP/Getty Images
‘I still cannot resume a life free of guilt, and find the weekly visits to the care home so difficult.’ Photograph: Sébastien Bozon/AFP/Getty Images

I am not ashamed to say that I wept while reading Michael Aylwin’s article (‘It comes for your very soul’: how Alzheimer’s undid my dazzling, creative wife in her 40s’, 9 July). He has articulated so many of the feelings and experiences that my wife and I have encountered across the more than 10 years since her diagnosis.

She too feared Alzheimer’s – her mother having died of the condition four years after diagnosis. Reaching the decision to place my wife in a care home, 58 years after making those wedding vows in church, tore me apart, and still does, even though family and social workers were insisting such a move was long overdue.

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