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The Guardian - UK
The Guardian - UK
World
Florence Miettaux in Mvolo and Mundri

The fight to cure South Sudan’s mysterious neurological disorder

A teenage girl standing under a tree
Tabo Yowan, 17, suffers from nodding syndrome and does not have access to anti-epileptic medication. The disorder killed her sister Photograph: Florence Miettaux/The Guardian

The other children move away, frightened, when the convulsions start. Tabo takes a long, guttural breath before slumping on to the ground unconscious, her entire body shaking. The 17-year-old’s mother, Penina Monyo Gulu Biro, gently holds the girl while the attack lasts.

A minute or two later, Tabo (pictured above) sits up again, tears rolling down her cheeks. “She cries because she’s sad to be like this,” says Biro.

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