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Chronicle Live
National
Sophie Brownson

The courageous Newcastle boy, three, who cannot walk or talk and suffers 15 seizures a day

A Newcastle family is calling for more research into a rare form of epilepsy that has seen their little boy suffer up to 50 seizures a day.

Catherine and James Holliday from Forest Hall saw their world turned upside down when their son Paddy was diagnosed with KCNT1-related epilepsy at just 18 weeks old. Paddy has suffered daily seizures since birth and at one point was having up to 50 a day.

Now aged three, Paddy cannot walk or talk and requires 24 hour care. Medication has helped to reduce his seizures to around 15 a day, however, his parents have been told the devastating news that the genetic condition means their son might not live to see his fifth birthday.

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