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Liverpool Echo
Liverpool Echo
National
Claire Barre & James McNeill

Teen battling life-changing condition affecting less than 40 people in the UK

A teenager was diagnosed with a life-changing condition after his parents noticed something 'wasn't right' when he was a baby.

Alfie Lund from Burscough was diagnosed with MECP2 duplication syndrome at the age of four and was only the seventh person in the UK to have the life-changing condition at the time.

His parents said they became concerned when Alfie was not able to walk or talk and did not sit up unaided until he was 14 months old. The MECP2 is now thought to affect less than 40 people in the UK.

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