Those who are sick and extremely online look for a community that understands them—one that accepts them and their various diseases. These individuals are referred to as "spoonies" online, a term that comes from a 2003 blog post by Christine Miserandino. In many cases, spoonies have been sick for a very long time. And since their identity revolves around their sickness, it's hard for them to imagine a world in which they are cured.
"The rise of a certain brand of extremely online identitarianism has given the chronically ill not just visibility but a tribe unto themselves, one that commands enormous attention and resources," writes novelist and culture critic Kat Rosenfield in her recent article for Reason.
