The devastated parents of a six-year-old boy given just 12 months to live have shared the symptom that first revealed something wasn't right.
Jayden Lamerton, from Plymouth, had seemed totally fine until December 21 last year when his mum Chelsea got a call from his school to say a teacher had noticed the youngster's left eye had "turned inwards".
She took him to hospital and doctors first checked his eyesight, which was found to be fine. Jayden was then booked in for an MRI scan.