Renfrew man Michael Conway is aiming to raise the profile of an ultra rare and incurable genetic brain disease this Christmas.
The Paisley Daily Express reported earlier this year about how Michael had been diagnosed with Adrenoleukodystrophy (ALD) – a life-limiting neurological condition which affects one in 20,000 men in the UK – back in 2016.
People who suffer from the rare disease face at least two challenges; not only must they deal with the consequences of the illness afflicting them but they must also battle public misunderstanding.
