Get all your news in one place.
100's of premium titles.
One app.
Start reading
The Independent UK
The Independent UK
Lydia Spencer-Elliott

PCOS has had a name change – but doctors are still falling behind in treating the hormone imbalance

Approximately 70 million women have PCOS with many learning how to live with the condition themselves as traditional health systems fail them - (Getty/iStock)

It’s a weird moment when you realise doctors don’t know everything. Mine occurred after I was hospitalised for a raging pelvic infection, which doctors had dismissed for weeks as nothing more than a standard UTI. Bloods were taken, scans were done and I was rushed into surgery that was forecast to take 45 minutes but, in fact, took four hours. At 26 years old, I lost a fallopian tube that was too damaged to stay in my body. It took months to recover physically – and far longer to adjust mentally.

But I’d learned something: that, as a woman, you have to advocate for yourself more than you should to get the help you need within the healthcare system. After demanding follow-up scans and blood tests, I was diagnosed with PCOS and showed signs of suspected endometriosis and pelvic scarring, which left me in agonising pain. I’m still yet to have the endometriosis diagnosis confirmed; on average, this laborious process takes just shy of a decade.

Sign up to read this article
Read news from 100's of titles, curated specifically for you.
Already a member? Sign in here
Related Stories
Top stories on inkl right now
One subscription that gives you access to news from hundreds of sites
Already a member? Sign in here
Our Picks
Fourteen days free
Download the app
One app. One membership.
100+ trusted global sources.