A little girl with a rare form of childhood dementia have pledged to make as many memories as possible for her - including seeing the ocean and Christmas lights - before she goes blind. Connie Annakin, six, suffers daily seizures and is losing the ability to walk or talk.
She was diagnosed with Battens Disease three years ago. Her parents Caroline and Rob were told most children diagnosed with the condition die between the ages of six and ten.
There is no cure, but her parents fought for Connie to have enzyme treatment for five years, administered at hospital through a port in her brain twice a month. Her family applied for an equipment grant to Newlife, the Charity for Disabled Children.
