
Little Vinnie James has had a tough start to life, but his parents are determined to give him the best possible future. The four-month-old was born with Goldenhar syndrome, an extremely rare condition that affects his face, heart, and breathing. Born with only one eye, a small jaw, and an extra ear on his cheek, Vinnie’s condition was immediately clear when he arrived into the world last November.
His dad, Rhys James, 26, and mum Grace, 25, were left shocked when their newborn son wasn’t breathing at birth. He was quickly rushed to intensive care at Glangwili Hospital in Carmarthen, where doctors suspected he had the rare syndrome—something that only occurs in 1 in 25,000 to 45,000 births.