The parents of a little boy with a rare form of motor neurone disease are calling for the condition to be included in the newborn screening “heel prick” test.
Brona and Brian Noonan believe having the check soon after birth would have been life-changing for son Donnacha, who is nearly two years old.
Today, on International Neonatal Screening Day, Brona said all babies should be tested for his condition, spinal muscular atrophy.
