The father of a little girl suffering from an incurable illness has spoken about how she is the 'happiest kid you can meet'. Eight-year-old Isla Sykes from Linthwaite suffers from Sanfilippo Syndrome which is a rare and incurable condition that drastically reduces life expectancy.
The disorder means a change in one gene renders the child’s body unable to break down some carbohydrates. The rare condition is unseen at birth, however it causes developmental delay and is similar to the onset of dementia.
There is no cure for Sanfilippo Syndrome and it is up to parents to manage the condition as best they can. Sufferers of this condition can experience a whole range of issues including numerous ear infections or sinus infections, diarrhoea, headaches, sleep problems and behavioural issues.
