Having a severely disabled child is a bit like being redirected on a flight when you’re going on holiday. You were expecting sun, sea, beaches and cocktails with little umbrellas, but instead you find yourself in the middle of a northern European city. At first, it’s a shock, but then you try the beer; it tastes really good. You see the stunning architecture — it’s not what you had expected, but you know what, it is really beautiful and very special.
When our son, John, was little, we were told he would almost certainly never walk or speak. I suspect that if it hadn’t been for my wife, Emily, he never would have walked and he never would have talked.
