A loving mother has opened up on raising a child with a rare congenial birth defect, saying she wasn't sure if 'we would be able to take her home'. One-year-old Clemie Roberts-Dadley was born with Pierre-Robin Syndrome, a rare condition characterised by an underdeveloped jaw, backward displacement of the tongue and upper airway construction.
Around one in 18,000 children are born with the condition. Her mother Jodie Roberts-Dadley, 36, said there was an issue in the womb which had a 'knock-on effect with everything central'.
Due to her condition, Clemie must wear a bone anchored hearing aid (BAHA) which attracts some attention when the family are out and about. This is one of the many challenges to Roberts-Dadley family has faced over the last year.
