Get all your news in one place.
100's of premium titles.
One app.
Start reading
Dublin Live
Dublin Live
National
Kim O'Leary

'My little girl went blind at 5 - but now we've been given the worst news imaginable'

A Dublin mum has shared her heartbreak after her little girl lost her sight to a rare genetic condition - and she has warned that other children may have it too.

Jolene O'Byrne, a mum-of-three from Balbriggan, had her family's life turned upside down when her youngest daughter, six-year-old Evelyn, was diagnosed with the incredible rare Batten's Disease, which affects the nervous system. According to Jolene, the first three years of Evelyn's life were normal until she started preschool and her family notice she was having issues with her speech and balance.

Then when Evelyn started school, her parents noticed that she was having difficulties with kerbs. Speaking to Dublin Live, Evelyn's mum Jolene explained how little Evelyn would go on to lose her sight.

Sign up to read this article
Read news from 100's of titles, curated specifically for you.
Already a member? Sign in here
Related Stories
Top stories on inkl right now
One subscription that gives you access to news from hundreds of sites
Already a member? Sign in here
Our Picks
Fourteen days free
Download the app
One app. One membership.
100+ trusted global sources.