Throughout her life Amy Hughes suffered with multiple complex issues and had learning difficulties. But despite the best efforts of medical professionals she was never given a diagnosis before her death at the age of 32.
Her mother Lynne said it was physically and mentally exhausting not knowing what was wrong with her precious daughter. To make matters worse her son Michael is now also living with many of the same symptoms.
"Amy first started getting ill when she was three and throughout her life we weren't able to get an answer," said Lynne, from Pontyclun, Rhondda Cynon Taf. "Sometimes we were given answers to just part of the issue, but we never fully knew why it was happening.