A mum has described the devastation of losing her baby son at just two days old after he was diagnosed with a rare condition..
Sara Harrold, from Wakefield, was pregnant with Arlo Jay Brian when doctors told her he had a defect called CDH, where the diaphragm does not close tight enough, meaning abdominal organs push through the hole into the chest cavity.
He had a 50/50 chance of survival, but was born prematurely on March 15 and died in Sara's arms just two days later.
Sara, who is mum to another son, 11, said that "everything was normal" with the pregnancy until she went for a scan at 20 weeks and doctors asked her to come back another time because her son was "so wriggly" and "moved so much".
Sara went for the second scan two days later as she had promised her oldest son that he would be the first to see the pictures. However, staff again struggled to get pictures and Sara was asked to return again another time.
When she came back, Sara was escorted into a separate room where a doctor showed her a worrying scan of her baby.
Sara said: "He said 'I'm sorry but you need to look at this picture' and then said he's got congenital diaphragmatic hernia (CDH) and that it's life threatening."
Sara said: "I asked if this meant he was going to die and he said 'I can't say. You will have to wait."
Sara admitted the news was "devastating" and she rushed out to get some fresh air and "broke down outside and rang my friend", who was there in a matter of minutes. She said: "I calmed myself down in the hope I could get some more information.
"They referred me to Leeds and I had to sit and wait until I heard from them which was the hardest thing. I had my son asking questions and all that was going through my head was that he didn't have a chance."
Following a scan in Leeds Sara was told that her unborn son had a hole in the left side of his diaphragm and "part of his bowels were in his chest". Doctors told her that he had a 50/50 per cent chance of living.
Sara said: "From that point on the pregnancy was just stress and not knowing what was going to happen rather than a happy, waiting-to-meet-your-baby sort of thing."
During the pregnancy, Sara also got diagnosed with polyhydramnios, which is a condition that causes excessive fluid to build around the baby in the uterus and can also lead to giving birth prematurely. "I was huge to be honest", Sara said.
Sara went into labour five weeks prematurely and medics found that Arlo's heart rate kept dropping and they struggled to bring it back up.
Following an emergency C-section it was found that Arlo's umbilical cord had wrapped around him which was "probably what was causing his heart to struggle".
She said that her son, who she named Arlo Jay Brian, was intubated and doctors "did everything they could" but he sadly died in her arms two days after his birth on March 17.
Sara said: "He fought really hard for a few days and then the doctors said it was time for the family to come in and say goodbye to him."
Sara's siblings, parents, grandparents and best friend all came in to say goodbye to Arlo. She said: "I brought my son in to come and see him. You don't realise when you are there in the moment how much it affects the whole family.
"It's hard knowing you are coming to meet someone and say goodbye to them at the same time. My son didn't understand what was going on and as a parent going through that and then having to be there for him - it's really hard.
"A lot of people have been there to help me and they have held me together. When you go through something like this you don't realise how much it tears you apart. You have to have people around you."
Sara's family and friends helped her organise a funeral for Arlo and his casket was taken to a cemetery in Normanton in a horse-drawn carriage.
Sara's friend Claire Sands has now set up a GoFundMe page to help with the funding of a headstone for Arlo.
Claire said: "We want to help ease the financial pressures as much as possible and give his mummy and brother a beautiful place for Arlo to rest and for his mummy, brother and family to visit."
Sara said: "My family and friends have been amazing with helping but they are not in a position to do everything with their own families and bills so Claire set up the page to help out financially.
"On top of losing someone, you don't realise the financial costs for funerals and death certificates when you do lose them. For me personally I found an amazing funeral directors called R J Burgess and just knowing that such kind people were helping to look after my baby has meant everything to me."
To view the GoFundMe page or to donate click here.
