A mum said she feels "lost" after her little girl died aged six.
Megan O'Toole said she can't imagine feeling worse than she does right now after her daughter Anastasia died after she slipped into a coma.
Megan said Anastasia was born prematurely with cockayne syndrome and had a short life expectancy, which she surpassed.
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Anastasia was also born deaf and blind - and couldn't walk or talk.
Megan said she practically lived in Alder Hey Children's Hospital throughout Anastasia's six years on earth, during which time the family received "amazing" support.
But Megan said she was the "most joyful child" who could tell different people by their smell.
The 30-year-old, from Bootle, said Anastasia became unwell five weeks ago and an infection caused her to slip into a coma that she never woke up from.
Since Anastasia's death on February 17, Megan said she feels "lost" and "can't imagine feeling worse than she does right now".
Megan told the ECHO : "I just feel lost. She played such a big part in my life and now she's gone I just feel so lost and empty.
"It's been such a tough six years after the shocking diagnosis.
"But she was the most joyful child ever.
"She was so smiley and bubbly - she loved being touched by her brothers and me.
"All of her other senses came to life as well - she knew people by their smell."
Megan is now looking to raise money for Anastasia's funeral to ensure she has the perfect send off.
Megan told the ECHO : "I've had to bury two other children so I can't get the funds for Anastasia's funeral.
"I'd like to get a horse and carriage for her or maybe a memorial.
"I just want her to have what she deserves - a beautiful send-off."
You can donate to Megan's fundraiser for Anastasia's funeral here.
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