Thousands of people will wear red this week to support children like Ejiah who had open-heart surgery at six months old.
While her baby boy was growing inside her, Emma from Sherburn-in-Elmet, in the outskirts of Leeds, was heartbroken when she was told her son would be born with heart defects. After Elijah was born, he was monitored for three hours and the family were later moved into a different ward which became their "second home" at Leeds Congenital Heart Unit.
Elijah was diagnosed with a pulmonary atresia heart defect, a hole in his heart, lack of oxygen in his blood, and a 22q11 deletion syndrome - a condition caused by genetic material missing from someone's DNA. At six months old the little boy had to have open heart surgery, and now his family want people to help raise awareness of heart defects.
