Motor neurone disease patients in England die waiting for home adaptations, campaigners say

Nicole Foster spent her life savings on adaptions to her home, including a stair lift and bathroom upgrade, after she was diagnosed with motor neurone disease earlier this year. Photograph: Richard Saker/The Guardian

People with motor neurone disease (MND) are dying waiting for grants to make their homes fit to live in due to a huge backlogs in applications, campaigners have said.

The MND Association has found it takes an average of 375 days for people in England to get essential home adaptations through the government’s disabled facilities grant (DFG) due to growing delays in the system.