Little Layla is the only girl in the world with two genetic mutations that mean nobody knows how long she will live. Despite this, her mum says she is the "happiest girl on the planet".
It took more than a year of her missing “every milestone” before Hannah, 27, says the condition of Layla, seven, really started to worry doctors. In November 2018, she was finally diagnosed with the NFIX gene mutation, which causes developmental and intellectual delay, epilepsy, overgrowth, skeletal anomalies and vision impairment.
But she was also diagnosed with the BPTF gene mutation, which is linked to breathing issues, heart problems and childhood cancer, for which she is tested every year. Yet Hannah said: “She has such a positive light about her.
