Get all your news in one place.
100's of premium titles.
One app.
Start reading
The Guardian - AU
The Guardian - AU
National
Cait Kelly Inequality reporter

Kathy has terminal cancer and cares for her son with a profound disability. At a crisis point, his NDIS funding ran out

‘I physically can’t care for Steven any more,’ says Kathy Rieger, whose breast cancer has metastasised. Her 37-year-old son Steven lives with cerebral palsy, seizures and is nonverbal. The NDIS does not fund enough hours for paid carers to look after his complex needs.
‘I physically can’t care for Steven any more,’ says Kathy Rieger, whose breast cancer has metastasised. Her 37-year-old son Steven lives with cerebral palsy, seizures and is nonverbal. The NDIS does not fund enough hours for paid carers to look after his complex needs. Photograph: Christopher Hopkins/The Guardian

Next to the bed Steven Rieger spends most his life in is a framed print that says: “This is my happy place.” For him, it is – his small room on the eastern outskirts of Melbourne is covered in Collingwood paraphernalia and basks in warm light.

Steven, 37, needs round-the-clock care. He lives with cerebral palsy, is nonverbal and suffers from seizures – natural light can trigger them so he spends almost all of his time in his room.

Sign up to read this article
Read news from 100's of titles, curated specifically for you.
Already a member? Sign in here
Related Stories
Top stories on inkl right now
One subscription that gives you access to news from hundreds of sites
Already a member? Sign in here
Our Picks
Fourteen days free
Download the app
One app. One membership.
100+ trusted global sources.