I’ll let Joe Monteleone introduce himself to you, because he has his way: “My name is Joe. I’m deafblind,” he signs. “I was born deaf, and in my 30s I found out I had Usher syndrome, type one. You can google Usher syndrome and what that means. Everyone who has Usher has varying degrees of vision. I have tunnel vision during the day, but at night-time I’m fully blind. I can’t see at all.”
He stops – this is the end of a spiel he has clearly given more than once – and lets out a single, hearty laugh. “But I guess you’ve got a way you’ll want to write the story?” he signs.
