Irish girl, 7, diagnosed with rare degenerative disorder after preschool teacher noticed she was clumsy

After losing her sight, Evelyn O’Byrne was diagnosed with a rare degenerative disorder.

Initially, mum Jolene explained that teachers thought issues with clumsiness were related to a sensory problem and so sought help.

Now at the age of seven, Evelyn has Juvenile Batten disease CLN3, a progressive degenerative disorder which causes a range of symptoms, which include loss of sight and seizures.