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Daily Mirror
Daily Mirror
National
Hannah Kane

'I thought my boy, 3, had conjunctivitis but key symptom led to devastating diagnosis'

A three-year-old boy has been given a devastating diagnosis after experiencing virtually no symptoms - with his mum initially suspecting he had conjunctivitis.

Jade Williams' world came crashing down when doctors told her little Rhys had a rare type of eye cancer known as Retinoblastoma on Friday, April 14.

She says he experienced barely any symptoms until she noticed he had a 'glassy, glazed' left eye.

"There were hardly any symptoms and I would've never thought this was it," she said. "His eye started looking glassy and glazed and I thought it was conjunctivitis.

"He kept saying his eye was 'sunny'. Then I noticed he was getting worse and the pupil was getting more red."

Rhys (bottom left) enjoys playing with brothers Kayden, 11, Theo, 9 and four-month-old Arthur (Jade Williams)
Jade was urged to take pictures of Rhys' eyes and send them to an optometrist (Jade Williams)

After asking a friend who works at Specsavers, Jade was urged to take pictures of Rhys' eyes and send them to an optometrist. The pictures show his right eye with a normal, black pupil but his left was white.

She was told to take him to A&E, and after just a few days and numerous tests, little Rhys was given the devastating diagnosis.

Doctors say he has the most aggressive type of tumour in his left eye.

"I went into survival mode and thought, 'I have to be strong for my son'," Jade said, who has three other sons Kayden, 11, Theo, 9 and four-month-old Arthur.

"When I put the kids to bed, that's when I broke down.

"You cannot prepare yourself, it was a sinking feeling."

Rhys now has to undergo treatment at the Oncology unit at Birmingham Children’s Hospital - one of only two hospitals in the UK to offer it - every four weeks.

If the tumour in his eye does not shrink enough by the next round of chemotherapy, doctors will have to remove his eye completely.

"There's nothing worse than seeing him in pain," Jade said. "It's heartbreaking and I cry at every single appointment."

Despite the tragic circumstances, Rhys is being incredibly brave and still enjoys helping Jade with baby Arthur.

The 29-year-old mum said: "He is amazing with him. He likes to help feed and change him.

Rhys loves playing just like any other child (Jade Williams)
Rhys could lose his eye if the tumour behind his eye doesn't shrink (Jade Williams)

"He loves playing football and we were about to start him in a team before all this, which is a shame.

"He also loves pretend play, and will be a doctor or a builder. He also loves wrestling with his older brothers still.

"He knows he has a poorly eye, and while we don't hide the word 'cancer' around him, he just knows he has to go to the doctors because he's unwell."

With the repeated treatment and Jade looking after a newborn as well as her two older sons, she and partner Chris Friery, as well as Rhys' dad Kurt are splitting the care between themselves.

This means they have to move their shifts around and take time off for hospital visits. Jade is also self employed so is not receiving an income while she is on maternity leave.

"We are co-parenting amazingly," she said. "We also have an amazing support network in friends and family.

Rhys' 'glassy' eye turned out to be a sign of a tumour (Jade Williams)

"But it's things like hospital parking and meals that are a struggle."

Jade has put together a fundraiser to raise vital funds to help her family through this difficult time. Not only that, she is also donating a portion of the proceeds to the Childhood Eye Cancer Trust to raise money for care packages for parents who are in the same position as her own.

"The hospital has been amazing," she said. "We couldn't be more grateful to the doctors and nurses for their care. We wanted to help others in our position, and we thought this was the best way."

The family has already smashed their £1,000 target with the GoFundMe page at more than a staggering £3,700, as they wait another week to find out if little Rhys' tumour has shrunk.

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