A young girl is battling with an extremely rare illness that only affects 20 people worldwide, as her devastated parents have opened up about how they are trying to cope.
In describing how "hard" times have been, they have revealed that their two-year-old is still a "happy little princess", despite spending months in hospital.
The family have now revealed that the little tot may be forced to be in complete isolation for months soon, following a life-changing operation.
