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The Guardian - UK
The Guardian - UK
World
Archie Bland

Friday briefing: The inequality in disability support: what my son gets, and what others can’t afford

A person in a wheelchair,
There is a postcode lottery of funding and services for disabled people and their carers. Photograph: David Jones/PA

Good morning. Last weekend, I wrote for the Guardian’s Saturday magazine about my two-year-old son, Max, who has cerebral palsy. The piece tried to explain some of the ways Max has changed how I look at the world. But it only really had one line about anyone other than us: “I feel queasy when I think about all the things we can afford to do that so many parents like us simply cannot.”

In fact, that feeling has nagged at me over the last two years, as my wife, Ruth, and I do everything we possibly can for Max – helped to an incalculable degree by our socioeconomic advantages. Today’s newsletter, with Katie Ghose, chief executive of the charity KIDS and vice-chair of the Disabled Children’s Partnership, a coalition of more than 120 organisations working in the same area, is about what Max gets, and what another child just like him might not.

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