Four brothers each diagnosed with a one-in-a-million disease have all had bone marrow transplants and are calling for more research. Luke, 22, Daniel, 26, Nathan, 28, and Joshua Hartley, 30, were diagnosed with X-linked Lymphoproliferative Syndrome (XLP) in 2003 when they were children.
XLP is a rare inherited condition that affects the immune system. The disease that gives people an increased risk of developing life-threatening infections like lymphoma cancer, affects an estimated one in every million boys worldwide.
By 2008, the brothers from Romsey in Hampshire had all undergone successful bone marrow transplants, without which they could have died. Joshua said: “I was 12 when I had my transplant and because of my 9/10 match, it saved my life.
