A family said they celebrate each Christmas like it is "the last time [they] are all together".
Paige Higham, from Runcorn, was born with a rare form of epilepsy called West syndrome as well as other complex medical conditions, which together have left her a permanent wheelchair user, as well as having poor vision and needing regular oxygen monitoring and 24-hour care.
Paige's mum Stacey said she also needs 24-hour care at home. Heartbreakingly, the family were told Paige would not live past her first birthday but the teenager is now 16.
