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Daily Mirror
Daily Mirror
National
Alahna Kindred

Family at 'breaking point' amid difficulties caring for son with rare genetic disorder

A family says they are at a "breaking point" as they wait for a full care package for their son who has a rare genetic disorder.

Hari Jones, six, from Gwynedd, has X Linked Myotubular Myopathy (XLMTM), which affects about one in every 50,000 male births.

He cannot walk or sit up and is connected to a life support machine that needs constant monitoring.

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