A family almost lost out on their 'dream holiday' after a life altering turn of events.
The Palin-Morgan family, from Ellesmere Port, have been blighted by a devastating condition- Carvajal Syndrome, which affects two of their children, Lucy and Thomas. Tragically, another of their daughters, Aleisha, died as a result of the condition in 2008, aged just eight.
Carvajal Syndrome is a rare heart condition, with symptoms such as heart disease, woolly like hair and thickening of the skin on the palms of the hands and soles of the feet. The condition is so uncommon that when Lucy was born in 2007, she was just the fourth known case in the world.
