Canada’s dementia strategies emphasize helping people live well at home for as long as possible. But for many people living with dementia, remaining at home relies almost entirely on the unpaid labour, financial sacrifices and persistence of family caregivers.
As health service researchers, we have spent decades studying systems of care for people living with dementia. Let’s look at the case of Margaret and Lisa, a fictional mother and daughter whose stories are based on the evidence we heard as we gathered material for our most recent study
