Regarding Matilda Boseley’s article (ADHD has become an identity, not just a disorder. We need a new way to talk about it, 20 September), as someone who has had epilepsy for more than 60 years, I can understand the frustration that someone with ADHD (or indeed any condition) may feel about how people stigmatise their condition.
However, I do not believe that referring to oneself as an ADHD person rather than someone with ADHD is helpful. I, personally, object to being called an epileptic, because my epilepsy does not define me as a person. If Matilda feels that it is right or helpful to identify herself with her condition, then that is her choice. Personally, however, I don’t think that anyone personifying themselves in terms of their condition does much to reduce stigma. In my experience, when we use such defining labels, the uninitiated will always tend to think and fear the worst. At best, labels that are misunderstood will increase fear and apprehension and do little to diminish stigma.
It is important to have a more enlightened discussion about disability to increase positive awareness. There are online support communities for people with epilepsy, and no doubt for those with other long-term conditions. My experience of engaging with these communities has been positive and supportive.
I do not see the point of defining oneself as one’s condition. I would rather be saying: “I am a person just like everyone else. And I have a long-term condition, just as lots of other people do.”
Chris Bennett
Edlington, Doncaster
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