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The Guardian - UK
The Guardian - UK
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Rhiannon Lucy Cosslett

Do we think enough about parents who care for sick or disabled children – and how not to make things harder?

Mina Holland in a cotton shirt, sleeves rolled, grins as she looks at her daughter Vida, who is sitting on a hospital bed opposite a cheerful drawing of a man with eyebrows leaping off his face
Lifeblood author Mina Holland and her daughter Vida at the Evelina London Children’s Hospital in 2022. Photograph: Jooney Woodward/The Observer

When you have a baby, especially if you’re in an antenatal class, or friends or family members have a child of about the same age, there is a feeling that you’re all in it together, at least at first. For me this big, life-transforming event might have felt intensely personal, but the shared connection with other new parents, who were also learning on the job, not to mention the books – Your Baby Week By Week, The Wonder Weeks – can trick you into thinking that the path is a predictable one.

From hourly feeds and wake-ups to sleeping through the night, breast- and bottle-feeding to solids, crawling to walking, maternity leave to nursery to school, the journey may have slightly different scenery, but the impression given is that ultimately it ends up in the same place.

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