A Merseyside, England, father has spoken of the pain of losing his son to a rare genetic condition that develops in infants and causes muscle weakness and respiratory failure.
Charlie Rooke was hospitalized with a partially paralyzed diaphragm in May 2019, when he was eight months old. In November of that year, his parents, Andy and Sarah Rooke, were told their son’s condition was terminal. He died four months later, on Feb. 25, 2020.
