Bryn is 16 and has never eaten a meal. His mother’s terrified the newly-cut NDIS won’t ‘step up to keep him alive’

Bryn Skyes with his mother, Shelley McRae, who is fighting to have his food funded by the NDIS. Photograph: Supplied

Bryn Skyes is 16 years old. He loves playing in the water on hot Ipswich days, going through the car wash with his mum and zooming down slides with his siblings.

He has also never eaten food. Bryn’s disability and gastrointestinal problems mean that he has been tube-fed since infancy.