The family of a brave boy battling an extremely rare condition is preparing to celebrate his tenth birthday - after doctors said he wouldn't live past two hours.
Milo Browne, from North Shields, suffers from a rare degenerative condition so unique it is known only as M3BHA and he is thought to be the oldest known case in the world. It has only ever affected around 10 other people in the world and most children with this condition do not live past two years.
The condition causes Milo to suffer from constant seizures, any of which could be fatal, as well as respiratory problems. He is unable to talk or eat, sit or stand without being fully supported meaning he needs 24-hour care. Sadly, his condition has continued to deteriorate and he is now on 24-hour oxygen.
