The death has occurred of the teenage daughter of Cork woman, Vera Twomey, who fought a lengthy campaign before she gained access to medicinal cannabis for her beloved Ava who had a rare form of epilepsy which caused her to have daily catastrophic seizures.
Ava Barry (13) who had Dravet Syndrome, passed away peacefully in hospital in Cork yesterday (Friday) surrounded by her family. She had been hospitalised following a recent illness.
In 2017 then Minister for Health Simon Harris granted a licence for the use of medicinal cannabis by Ava. Her mother Vera, who is from Aghabullogue, Cork had walked from Cork to Leinster House in Dublin on two occasions in a bid to highlight the plight of young Ava. Her condition was so serious that it had previously pushed her in to cardiac arrest and an eight-day coma.
