Get all your news in one place.
100's of premium titles.
One app.
Start reading
The Guardian - AU
The Guardian - AU
Politics
Bianca Nogrady

‘You mean there’s nothing?’ The families fighting for their children with dementia

The Lloyd family at home. Ethan (left), nine, and his brother, Ronin, seven, have childhood dementia.
The Lloyd family at home. Ethan (left), nine, and his brother, Ronin, seven, have childhood dementia. Photograph: Mike Bowers/The Guardian

In many ways, Ronin and Ethan are typical young boys. They love Hot Wheels toy cars, Shaun the Sheep, rude noises and pizza nights. Nine-year-old Ethan dotes on the family pets. Ronin, seven, is always booting a soccer ball around the back yard. “They’re two absolutely lovable friendly kids, very affectionate and can be very loving when they’re happy and when things are going their way,” their mother, Teresa Lloyd, says.

But Ronin and Ethan have dementia. When Ethan was two or three, his parents noticed his speech wasn’t developing properly. Now, at nine, he has the language skills of a toddler. He’s still walking unaided but this, Lloyd expects, will not last. He has no sense of personal safety and will dart out in front of a car without any awareness of the danger. He needs help with activities such as dressing and eating, the latter which requires constant supervision in case he doesn’t swallow properly and chokes.

Sign up to read this article
Read news from 100's of titles, curated specifically for you.
Already a member? Sign in here
Related Stories
Top stories on inkl right now
One subscription that gives you access to news from hundreds of sites
Already a member? Sign in here
Our Picks
Fourteen days free
Download the app
One app. One membership.
100+ trusted global sources.