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Liverpool Echo
Liverpool Echo
World
Gemma Jones

Woman, 32, needs to raise £70,000 in four weeks or face death due to rare condition

A woman is on a mission to raise £70,000 in just four weeks to try and save her life.

Melanie Hartshorn suffers from Ehlers-Danlos Syndrome (EDS) and a rare form of muscular dystrophy which causes her joints to dislocate. The British woman is the only person in the world to live full-time with a metal halo fixed to her skull.

Her skull, neck and spine were regularly dislocating causing life-threatening seizures. She underwent surgery last year to have a surgical brace, called a halo, screwed into her skull and spine to prevent the dislocations.

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