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Irish Mirror
Irish Mirror
Lifestyle
Michelle Cullen

Woman, 21, warns after what she thought was harmless rash turned out to be deadly disease

A woman has spoken out after what she thought was a harmless rash turned out to be a sign of a serious health condition.

Juliana Pascarella, 21, from Virginia, USA, noticed tiny red dots appeared all over her body in April 2020.

She was taken to hospital, where she was diagnosed with the rare blood condition disorderidiopathic thrombocytopenic purpura (ITP).

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She said: "Being a young female entering her 20s, I realised life is not guaranteed, and I have to make the most of what the universe has provided me", reports Express.

"I must take care of my body and look out for myself, as well as others."

"This experience was life-changing, and although it was one of the worst, I'm glad to have a set diagnosis.

"I can be prepared for future episodes and help others understand a condition I once knew nothing about."

ITP is characterised by an abnormal reduction in the number of platelets in the blood. It occurs when the immune system attacks a person's platelets.

It can lead a sufferer to bruise easily, experience bleeding gums and internal bleeding.

For Ms Pascarella, the risk was severe as she was told the condition could lead to her developing a life-threatening brain haemorrhage.

Juliana told NeedToKnow.online: "Knowing that my brain could haemorrhage at any second and I could lose my life really showed me a new perspective on life."

Bruises on Ms Pascarella's legs (Jam Press/@bb.jules)

She explained how a haematologist told her the platelets in her blood were at a low of 3,000.

The student added: "After running more tests, he said I was lucky I wasn't internally bleeding, and if I hadn't come to the hospital, there's a high chance I couldn't be saved.

"I felt overwhelmed and scared."

She went on to describe the loneliness she felt as her parents were not allowed to visit her in the hospital.

She said: "I didn't see anyone until I was discharged, so it was very lonely.

"However, hearing the news about what could have happened to me almost made me feel a bit more comfortable.

"Comfortable knowing why the dots appeared, knowing why I've been feeling ill and weak lately, and that I finally have answers."

Before she was diagnosed with ITP, Juliana was unaware of the disorder.

She said: "Living with ITP can be really scary. Medically, the 'I' in ITP stands for idiopathic – meaning doctors are unaware of the cause of the condition.

"This makes it a bit harder to understand why my body was not creating enough platelets and makes it even harder to prevent another episode."

She explained how her own experience of ITP began with feeling not just tired but fatigued and sick.

Her body also felt heavy, her vision was blurred, she experienced nausea and dizzy spells.

Months before medics diagnosed ITP, her skin became paler, and she experienced a loss of appetite.

Juliana said: "Not knowing the reason behind any of it can be frightening during my everyday life, knowing that within just an hour, my platelets could drop severely, with no answers as to why.

"I am generally OK, other than the constant fear that just because I may feel tired or sick one day, I might be at risk of another episode."

"It's very confusing and a back-and-forth fear, wondering when or if it will spontaneously happen to me again."

At hospital, Juliana underwent a series of blood tests. When doctors discovered her platelets were low, she had an immediate blood transfusion. Without the procedure, her brain could have haemorrhaged.

She said: "The nights of IVIG transfusion treatments were the worst. It is a therapy treatment for patients with antibody deficiencies, but I knew it was the only thing that was helping me.

"Having someone else's plasma enter into my body over three separate seven-hour periods was a lot to take in.

"Completely replacing my own blood with someone else's was something I just couldn't wrap my head around and the process was consistently nauseating and painful."

Juliana's story went viral on TikTok as she shared her experience of ITP in a video which has more than two million views and 200,000 likes.

She encouraged more people to speak up about their health if they feel something is wrong rather than ignoring the signs.

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