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Shobi Sivathamboo, Research Fellow, Monash University

What is sudden unexpected death in epilepsy, and what causes it?

Epilepsy Cameron Boyce Brain Disney Channel
Shutterstock

When 20-year-old Disney Channel star Cameron Boyce died of “sudden unexpected death in epilepsy” (known as SUDEP) in 2019, his parents had not even heard of the condition.

“We didn’t know about SUDEP. We have family members who are doctors who never heard of SUDEP,” Cameron’s father Victor said in an interview.

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