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Edinburgh Live
Edinburgh Live
National
Sian Traynor

West Lothian mum terrified to leave home during the day after son's reaction to light

A West Lothian mum has shared how she was terrified to leave her home with her son in fear it would trigger his aggressive seizures.

Stacey Hutchison, from Whitburn, experienced multiple blue light trips to hospital with her young son Frankie beginning when he was a baby before he was diagnosed with Dravet Syndrome.

A rare and life-limiting form of epilepsy, the condition affects every one in 15,000 babies, with Frankie's seizures becoming so severe even light or rippling water in the bath could set it off.

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