In the mornings, Rosa Andresen showers hurriedly before her daughter wakes up, worried the 24-year-old might suffer a seizure or tumble out of the bed while she is still shampooing her hair.
Her daughter Amanda Andresen, who does not speak, was born with a condition affecting the part of the brain that bridges its left and right sides. Her walking is unsteady, and she needs to be assisted from the moment she gets up.
In the front room of their South Gate home, Rosa guided Amanda gently from a cushy sofa to the dining table, where she had prepared a mixture of Malt-O-Meal and crumbled bits of toast smeared with peanut butter, stirring them until they grew mushy enough to swallow.