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The Independent UK
The Independent UK
World
Rhian Lubin

Two brothers have the same genetic disorder. Their insurance only covered life-altering treatment for one of them

Noah Insurance FDA United States BCBs Blue Cross Blue Shield Gene Therapy Disease
Brothers Hunter (left) and Noah (right) were diagnosed with Duchenne muscular dystrophy in 2017. Noah, 9, has received gene therapy on his mother’s health insurance, but Hunter, 10, was denied the exact same treatment. - (Alison Joseph)

For Alison Joseph, watching her 9-year-old son Noah splashing around in the swimming pool this summer for the first time was bittersweet.

Overjoyed that Noah had learned to swim, the mom was simultaneously reminded that her other son, 10-year-old Hunter, couldn’t join in.

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