A mum whose twin sons have been diagnosed with a cruel muscle condition which means they were unlikely to live past two-years-old without treatment has described her family's "living nightmare".
Jenna Whyman and husband Steve realised something was wrong when they spotted babies Raffa and Sibby were not able to lift their heads and seemed to have limited movement.
But Jenna, 36, told The Mirror that healthcare workers suggested that the infants were "lazy" and that they would eventually catch up.
