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Daily Mirror
Daily Mirror
National
Jade Culver

Tot with rare condition that leaves her unable to COMB her hair compared to Boris Johnson

A three-year-old's white wispy hair has seen her compared to outgoing prime minister Boris Johnson.

Emilia Naylor was diagnosed with uncombable hair syndrome (UHS) which causes her hair to be brittle, uncontrollable and a shocking bright white.

Mum, Claire Maxfield, 33, tried everything to tame her tot's wild barnet, but had no choice but to rarely brush and wash it due to its fragile state.

The support worker from Oswestry, Shropshire, received plenty of comments from friends, family and complete strangers comparing Emilia's hair to prime minister Boris Johnson and other famous figures like Einstein.

Claire, a mum of three, said: "When Emilia was born, she had a full head of brown hair which seemed quite healthy.

Boris Johnson has famously wispy hair (Daily Mirror/Andy Stenning)

"But at six weeks, we started to notice that her hair was falling out in clumps, and that it was growing back as this white sort of baby chick type fluff.

"We passed it off as baby hairs at first, thinking that she would grow out of it.

"It was only when a friend mentioned that Emilia looked as though she had uncombable hair syndrome that I first found out what it was.

"I ended up googling it, and comparing pictures with Emilia's hair, and ended up being certain that she had UHS.

"We took her to the doctors, and they referred us to a dermatologist who finally saw her at the beginning of 2020.

"They officially diagnosed her with UHS and recommended lots of different remedies in order to treat it.

Since receiving the diagnosis, Emilia has had a range of wild comments about her hair like being compared to Boris Johnson, and even having strangers wanting to touch it.

Claire adds: "We can't go anywhere without being stopped by adults and kids alike asking why her hair is the way it is.

"They'll either want to touch it or will make comments saying that she looks like a mini-Einstein, or Donald Trump.

"Some even say her hair looks like a wig, which I guess it kind of does sometimes!

"Others will ask if I've crimped it because it's so naturally wavy, and the texture makes it look styled.

"We've never really had any bad comments except for some rude teens saying that she looked a mess which I soon nipped in the bud.

"Her nursery friends are the best, they've all been so lovely about it, and will always comment on how amazing her hair looks when I drop her off.

"Family and friends were quite shocked at first, but they know how to look after her hair, and have come to love her wild frizz."

Since being diagnosed with UHS, Claire has tried a variety of methods to try and tame Emilia's hair, often finding that recommended remedies have never worked.

She said: "I've tried everything from argan oil-based hair products, leave-in hair masks and soft brushes.

"Her hair has fallen out or she's been in pain from all of them.

"I've actually found that the best way to care for her hair is to use coconut oil-based shampoo and conditioner, and to wash her hair just twice a week.

"Washing it more than that causes it to become even more brittle than it already is and makes it very hard to brush.

"I usually put her hair in a half up, half down style so it's not getting all tangled, and so her Emilia's little sisters, Daisy, two, and Poppy, four months, don't try to pull on it.

"It's quite upsetting sometimes that I can't do more with it, like putting in little bows and doing fun hairstyles like I can with Daisy.

"Her dermatologist said that in some cases, UHS sufferers grow out of it in puberty and their hair starts to tame.

"I'm hoping that it happens for her so she can have fun styling her hair and be all girly with it."

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