Blair Snelgar, a three-year-old with Angelman syndrome, unexpectedly passed away in her sleep on April 29, 2023. Her family was deeply shocked by her death as the condition is not typically life-threatening.
Continuing to grieve their loss, Blair's family decided to donate her brain to an American research facility to understand Angelman syndrome further. Blair would have turned four this year. Instead, her family prepared to commemorate the memory of their joyful daughter.
