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ABC News
ABC News
Health

Those with Prader-Willi syndrome suffer from insatiable hunger, but the challenges don't stop there

Evie's condition means she is developing more slowly than most children her own age. (ABC News: Andrew Kennedy)

Kellie Szentirmay remembers being pregnant with her twins and imagining the future — all four of her children gleefully running to play by the creek at the back of her Canberra home.

"But that's not going to be our life," Ms Szentirmay says. 

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